♦ RE-AIM Collaborators
The primary goal of the Cancer Communication Research Center [CCRC] is to identify and describe optimal communication structures and processes in organizations that facilitate patient-centered communication in cancer care. We are pursuing this goal across the cancer continuum – from prevention to early detection, diagnosis, treatment, life after cancer to end of life – and across types – from breast, cervix, colorectal, lung, prostate, and other cancers. We blend this diversity of points in the cancer continuum and types of cancer with a singular focus on clinical settings and the communicative encounters that define the experiences of patients and their families and the team-based and organized responses for producing superior health outcomes. The CCRC is affiliated with Kaiser Permanente, the HMO Cancer Research Network and the National Cancer Institute.
The NIH Collaboratory is pleased to announce new training resources available on the Living Textbook. These resources are being shared with the research community to provide guidance about building partnerships with health systems and overcoming the challenges of conducting embedded pragmatic clinical trials (ePCTs). The materials reflect the knowledge, insight, and best practices acquired by the NIH Collaboratory program and its Demonstration Projects.
The Center of Excellence for Training and Research Translation (Center-TRT) bridges the gap between research and practice and supports the efforts of public health practitioners working in nutrition, physical activity and obesity prevention. The Center TRT is based in the Center for Health Promotion and Disease Prevention at the University of North Carolina at Chapel Hill, one of the Prevention Research Centers supported by the Centers for Disease Control and Prevention (CDC). Center-TRT reviews research-tested and practice-based interventions across the five dimensions of RE-AIM. The Center TRT offers the RE-AIM Online Module, a web-based module that provides instruction and case examples to illustrate the five dimensions of the RE-AIM framework.
The National Cancer Institute provides a resource known as RTIPS or the Research-Tested Intervention Programs resource tool. You may already know this, but RTIPS is NCI evidence-based repository of EB programs- I am biased of course, but has 187 EB programs- that address almost all different health behaviors and all age groups and settings (e.g. community, home, school, worksite) and very searchable.
The Center for Substance Abuse Prevention (CSAP) is the sole federal organization with responsibility for improving accessibility and quality of substance abuse prevention services. The Center provides national leadership in the development of policies, programs, and services to prevent the onset of illegal drug use, underage alcohol and tobacco use, and to reduce the negative consequences of using substances. CSAP promotes a comprehensive prevention system approach that includes community involvement and partnership among all sectors of society.
The Implementation Network distributes information on late-breaking research, practice, and policy activities in the area of dissemination and implementation in health care and public health. This includes publications, reports, conferences, meetings, program announcements, funding opportunities, and other various proceedings. It is supported in part by VA QUERI. This website is managed at the University of Alabama at Birmingham, School of Public Health.
The mission of the Implementation Science (IS) team at the National Cancer Institute is to build and advance the field of IS by integrating new knowledge across clinical and public health research, practice, and policy. The IS team and website provide valuable resources to build the science of implementation; develop ongoing training networks to build capacity to conduct dissemination and implementation research and practice; and disseminate knowledge gained from cancer control research by establishing robust partnerships between researchers and practitioners.
The National Council on Aging (NCOA) is a nonprofit service and advocacy organization headquartered in Washington, DC. The organization provides a national voice for older Americans and the community organizations that serve them. NCOA recommends using RE-AIM to evaluate the evidence-based programs that it sponsors and has used the RE-AIM website as a resource for their grantees.
♦ Evidence-Based Review Sites
AHRQ, an agency of the U.S. Department of Health & Human Services, aims to improve the delivery of clinical preventive health care by developing tools, resources and materials to support health care organizations and engage the entire health care delivery system. The Research in Action- Effective Health Care Program section of the website provides an interpretation of findings from AHRQ-sponsored studies and demonstrates how results can be used in practice.
The Cancer Control P.L.A.N.E.T. (Plan, Link, Act, Network with Evidence-based Tools) acts as a portal to provide access to data and resources for designing, implementing and evaluating evidence-based cancer control programs. The site provides five steps (with links) for developing a comprehensive cancer control plan or program.
The Cochrane Collaboration is an international network of more that 28,000 people from over 100 countries (mostly expert volunteers) that work together to assess evidence to help people make decisions about health care practices and policies. The group prepares Cochrane Reviews and aims to update them regularly with the latest scientific evidence. They also prepare the largest collection of records of randomized controlled trials in the world, called CENTRAL, published as part of The Cochrane Library.
The Community Guide provides a repository of the 200+ systematic reviews conducted by the Task Force, an independent, interdisciplinary group with staff support by the Centers for Disease Control and Prevention. Each review gives attention to the “applicability” of the conclusions beyond the study populations and settings in which the original studies were conducted. This resource presents evidence-based Task Force recommendations and findings about what works to improve public health. Systematic reviews are used to answer these questions: Which program and policy interventions have been proven effective?; Are there effective interventions that are right for my community?; What might effective interventions cost?; and What is the likely return on investment?
This resource contains the U.S. Preventive Services Task Force recommendations on the use of screening, counseling, and other preventive services that are typically delivered in primary care settings. The USPSTF, an independent panel of experts supported by the Agency for Healthcare Research and Quality (AHRQ), makes recommendations based on systematic reviews of the evidence related to the benefits and potential harms of clinical preventive services.
♦ Data Sources and Initiatives
This website page of the Centers for Disease Control and Prevention (CDC) includes links to data and statistics for over thirty-five health topics, ranging from aging to workplace wellness. The page also serves as a hub to web-based reports, interactive data-related tools and resources.
This interactive website provides access to 50 state reports with rankings of each county within each state according to its health outcomes and health determinants. The County Health Rankings are a key component of the Mobilizing Action toward Community Health (MATCH) project. MATCH is collaboration between the Robert Wood Johnson Foundation and the University of Wisconsin Population Health Institute.
Access to high quality data improves understanding of a community’s health status and determinants, and facilitates the prioritization of interventions. The purpose of the Health Indicator Warehouse (HIW) is to provide a single, user-friendly, source for national, state, and community health indicators. The indicators in the HIW are categorized by topic, geography and initiative.
Healthy People provides science-based, 10-year national objectives for improving the health of all Americans. For 3 decades, Healthy People has established benchmarks and monitored progress over time in order to: 1) Identify nationwide health improvement priorities; 2) Increase public awareness and understanding of the determinants of health, disease, and disability and the opportunities for progress; 3) Provide measurable objectives and goals that are applicable at the national, State, and local levels; 4) Engage multiple sectors to take actions to strengthen policies and improve practices that are driven by the best available evidence and knowledge; and 5) Identify critical research, evaluation, and data collection needs. Healthy People 2020 contains 1200 objectives in 42 topic areas (923 with baseline data, 237 for which baseline data will be developed during the decade) designed to serve as this decade’s framework for improving the health of all people in the United States.
The National Center for Health Statistics (NCHS) is a part of the Centers for Disease Control and Prevention, U.S. Department of Health and Human Services. NCHS is the Federal Government’s principal vital and health statistics agency. NCHS data systems include data on vital events as well as information on health status, lifestyle and exposure to unhealthy influences, the onset and diagnosis of illness and disability, and the use of health care. These data are used by policymakers in Congress and the Administration, by medical researchers, and by others in the health community.
The National Health and Nutrition Examination Survey (NHANES) is a survey conducted by the National Center for Health Statistics (NCHS), Centers for Disease Control and Prevention. This survey has been designed to collect information about the health and diet of people in the United States. NHANES is unique in that it combines a home interview with health tests that are done in a Mobile Examination Center.
♦ Reporting Guidelines
CONSORT, which stands for Consolidated Standards of Reporting Trials, encompasses various initiatives developed to alleviate the problems arising from inadequate reporting of randomized controlled trials (RCTs).The CONSORT statement is an important research tool that takes an evidence-based approach to improve the quality of reports of randomized trials.
As a resource center for good reporting of health research studies, The EQUATOR Network is an international initiative that seeks to improve reliability and value of medical research literature by promoting transparent and accurate reporting of research studies.The site includes a library for health research reporting listed by study type, including experimental, mixed methods, qualitative and quality improvement studies.
Prism is designed to be a comprehensive model that aids in the translation of research to practice using the concepts from the areas of quality improvement, chronic care, the diffusion of innovations, and measures of the population-based effectiveness of translation. The model evaluates how an intervention interacts with the targeted audience and how this impacts adoption, implementation, maintenance, reach, and effectiveness.
The Standards for Reporting Implementation Studies (StaRI) Statement is a resource located on the Equator Network that aims to aid in the reporting of implementation studies. This initiative aims to develop better guidelines for result transparency and the accurate reporting of implementation findings. Use the link above to learn more about the initiative.
Evidence-based public health decisions are based on evaluations of intervention studies with randomized and nonrandomized designs. Transparent reporting is crucial for assessing the validity and efficacy of these intervention studies, and, it facilitates the synthesis of the findings for evidence-based recommendations. Therefore, the mission of the Transparent Reporting of Evaluations with Nonrandomized Designs (TREND) group is to improve the reporting standards of nonrandomized evaluations of behavioral and public health interventions.